Program Contents: 27 minute DVD
Copyright Date: 2011
Roll On aims to share the everyday lives of families living with neuromuscular disorders with caseworkers and clinincians, and the parents of children who have been recently diagnosed. It does this in order to help them gain a new perspective on living with these disabilities.
The children--between the ages of six and eighteen--and their parents featured in the video discuss:
- What it was like to first hear from a doctor that your child will never walk or talk, and then feeling the need to treat your child like he or she does not have an illness,
- How to handle inclusion in and outside of the classroom, as well as how to approach and work with parents when accomodations are needed for events like sleepovers and birthday parties,
- Common misconceptions the able bodied community has of people with neuromuscular disabilities,
- How sympathy from able bodied people may lead the disabled to feelings of victimization--a complete mischaracterization of themselves as thriving, productive individuals.
Roll On acknowledges the reality that life can be difficult, whether it is fighting a health care system that seems to be working against you, or facing feelings of isolatio and anger, or even having thoughts of suicide that can plague a child with disabilities.
But from diagnosis to life expectations, the parents and children featured in Roll On candidly share their experiences and advice on how to seek help and succeed and how to celebrate the blessings on their unique path in life.